Benny's World

Welcome to Benny’s World

Benny’s World is a 501(c)(3) non-profit foundation established to fund research to find a cure for pediatric brain stem tumors, specifically targeting Diffuse Intrinsic Pontine Glioma (DIPG). Benny Watters was diagnosed with a DIPG on January 18th, 2008. This foundation has been created by his family.

This website is not only a place to learn about Benny and DIPG, but also a place of hope, together we can fight this disease and ensure Benny continues to beat the odds.

Introducing Benny

On Friday January 18th, 2008, Benjamin Benaud Watters, "Benny", was diagnosed with a brain-stem tumor (Diffuse Intrinsic Pontine Glioma). It all began back in early November 2007 when his left eye started to cross. It was thought he had strabismus and glasses and patching were prescribed. The eye failed to improve, and so he had an MRI on January 18th and to our shock they discovered the tumor.

Benny is a happy, active, sports loving 3 year old, adored by his big sisters Lily and Isabella and parents Lisa and Brendan. He loves The Wiggles, Dora and Blues Clues, is a superstar on the computer and a master of Nintendo Wii.

Benny loves The Wiggles and has friends and family all over the world, inspiring the foundations name, Benny's World.

11th October 2008

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Latest News

FOJ's motto
"Live in the moment.....Play in the moment!"

Benny's joining the Lake Forest College Football Team

Thank to the Friends of Jaclyn Foundation (FOJ) Benny is being adopted by the Lake Forest College Football Team. FOJ matches pediatric brain tumor children with local college or high school sports teams. As their website states, it's all about love, support and friendship.

Benny's World on Facebook

Click on the link to become a fan of our Benny's World page on Facebook.

Benny's World on Facebook

Benny's Journal

25th February 2009

Thursday, May 21st, 2009

Our visit to the hospital yesterday for Benny's 2nd round of the Nimo Chemo was actually a great day. We somehow got through the day on the fast track, there were no delays and we were home earlier than the week before even though this week we had to wait for lab results and meet with Dr Stew. Benny did great with the chemo, we've seen no side effects from the first week, he's just enjoying life as usual. He did sit by himself for the needle poke again. It wasn't willingly, we did get a few........