Benny's World

Welcome to Benny’s World

Benny’s World is a non-profit foundation established to fund research to find a cure for pediatric brain stem tumors, specifically targeting Diffuse Intrinsic Pontine Glioma (DIPG). Benny Watters was diagnosed with a DIPG on January 18th, 2008. This foundation has been created by his family.

This website is not only a place to learn about Benny and DIPG, but also a place of hope, together we can fight this disease and ensure Benny continues to beat the odds.

Introducing Benny

On Friday January 18th, 2008, Benjamin Benaud Watters, "Benny", was diagnosed with a brain-stem tumor (Diffuse Intrinsic Pontine Glioma). It all began back in early November 2007 when his left eye started to cross. It was thought he had strabismus and glasses and patching were prescribed. The eye failed to improve, and so he had an MRI on January 18th and to our shock they discovered the tumor.

Benny is a happy, active, sports loving 3 year old, adored by his big sisters Lily and Isabella and parents Lisa and Brendan. He loves The Wiggles, Dora and Blues Clues, is a superstar on the computer and a master of Nintendo Wii.

Benny loves The Wiggles and has friends and family all over the world, inspiring the foundations name, Benny's World.

9th April 2008

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Please subscibe to our journal to keep updated on Benny’s progress and upcoming events.

Latest News

Benny's World Merchandise

NEW - Benny's World Reminder Bands.
Available in 3 sizes and 2 colors. Grey is the color to raise awareness for brain tumors, (grey matter) and gold is the color for childhood cancer; our children are more precious than gold. Wear one or both.

October 27th, 2008
Benny's most recent MRI showed the tumor as unchanged.

October 18th, 2008
It's 9 months today since Benny was diagnosed. 9 months from diagnosis is the median survival time for DIPG patients. Benny is doing great, we are very thankful.

Benny's Journal

7th November 2008

Friday, November 7th, 2008

“STOP, Don’t talk to me!”

This is Benny’s latest way of dealing with situations that don’t appeal to him. For instance when he is stealing food out of the fridge and you ask him what he is doing; when you ask him if maybe he forgot to use the potty because of the fragrance you can smell in the air; when you discover his artwork on the walls instead of on a piece of paper……… It’s hard to keep a straight face and get mad and I guess it is better than him screaming but if anyone was ever in doubt as to who was in charge in this house, he’ll put you straight.