Benny’s World Foundation
The Foundation

First Fundraiser - 11th May 2008
Brewers v Cardinals
, Milwaukee

Benny’s World is a 501(c)(3) non-profit foundation established to fund research to find a cure for pediatric brain stem tumors, specifically targeting Diffuse Intrinsic Pontine Glioma (DIPG). The prognosis for children with DIPG is grim, whilst survival rates for childhood cancer have improved, little progress has been made in curing children with this type of tumor. For the majority, currently available treatments including clinical trials have only resulted in a temporary improvement in neurological function, tumor progression eventually returns and the child dies. Continuing research is essential to find a cure.

Cancer not only invades the patient, it's affect on families, friends and the community is far-reaching. For that reason, Benny's World will also assist organizations that help families affected by pediatric cancer. The foundation is dedicated to increasing public awareness of pediatric cancer.

Benny loved The Wiggles and had friends and family all over the world, inspiring the foundations name, Benny's World. This website is not only a place to learn about Benny and DIPG, but also a place for smiles and hope inspired by how Benny lived life.  Join us to find a cure for this devastating disease.

 


Other Foundations

These foundations have provided support to Benny and his family.  We are grateful for the work they do for all families affected by childhood cancer.

SuperSibs! - Ensuring that siblings of children with cancer are honored, supported and recognized.
Supersibs.org

Monkey In My Chair - Program for preschool and elementary aged children who are away from school due to cancer.
MonkeyInMyChair.org

Beads of Courage - Providing Arts-In-Medicine for children with serious illness.
BeadsOfCourage.org

Bear Necessities - Dedicated to eliminating pediatric cancer, providing hope & support to those who are touched by it.
BearNecessities.org

Riah's Rainbow - Bringing the creative world to children in hospitals.
RiahsRainbow.org

Make a Wish Foundation - Grant the wishes of children with life-threatening medical conditions.
Wish.org

Hope's Friends - Pediatric Hospice care in northeastern Illinois focused on providing hope, support and quality of life.
HopesFriends

CaringBridge - Free websites that connect people experiencing a significant health challenge.
CaringBridge.org


To learn more about the Foundation visit:
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Statistics

• An estimated 3,410 children under age 20 are diagnosed annually in the USA with a brain tumor. DIPG accounts for about 250 of those cases.
• Brain tumors are the second leading cause of cancer-related deaths in children under age 20 in th USA. Leukemia remains the first.

Source: Central Brain Tumor Registry of the US.

• The median overall survival of children diagnosed with DIPG is approximately 9 months. The 1 and 2 year survival rates are approximately 30% and less than 10%, respectively.

Source: Treatment of newly diagnosed diffuse brain stem gliomas in children - David N. Korones.

Public and private support for pediatric cancer research accounts for <3% of all cancer funding with relatively few dollars targeted specifically to pediatric brain tumor research.

Source: The Rory David Deutsch Foundation

 

Foundations dedicated to DIPG
You can learn alot more about DIPG and the children affected by it from these websites.

The Cure Starts Now
TheCureStartsNow.org

Smiles for Sophie Forever
SmilesforSophieForever.org

Prayers from Maria
PrayersfromMaria.org

Reflections of Grace
ReflectionsOfGrace.org

Jeffrey Thomas Hayden Foundation
jthf.org

Marc Jr's Foundation
MarcJr.org

The Max Lacewell Foundation
MaxLacewellFoundation

The Rory David Deutsch Foundation
RoryD.org

Just One More Day
JustOneMoreDay.org

I Could Be Your Child
ICouldBeYourChild.org

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