Benny’s World is a 501(c)(3) non-profit foundation established to fund research to find a cure for pediatric brain stem tumors, specifically targeting Diffuse Intrinsic Pontine Glioma (DIPG). Benny Watters was diagnosed with a DIPG on January 18th, 2008. This foundation has been created by his family.

This website is not only a place to learn about Benny and DIPG, but also a place of hope, together we can fight this disease and ensure Benny continues to beat the odds.

Introducing Benny

On Friday January 18th, 2008, Benjamin Benaud Watters, "Benny", was diagnosed with a brain-stem tumor (Diffuse Intrinsic Pontine Glioma). It all began back in early November 2007 when his left eye started to cross. It was thought he had strabismus and glasses and patching were prescribed. The eye failed to improve, and so he had an MRI on January 18th and to our shock they discovered the tumor.

Benny was only two when he was diagnosed, he is now 5 years old.  He has participated in 5 clinical trials.  He is a happy, sports loving 5 year old, adored by his big sisters Lily and Bella and parents Lisa and Brendan.  He loves playing with his Wii and games on the computer.

Benny loves The Wiggles and has friends and family all over the world, inspiring the foundations name, Benny's World.

11th October 2008